‘Grey’s Anatomy’ Actor Reveals Rare Incurable Neuromuscular Diagnosis

Steven W. Bailey, best known for “Grey’s Anatomy” fans as Joe, the friendly bar owner whose pub has become a second home for Seattle Grace doctors, opens up about a deeply personal health battle he’s been quietly facing for years. The 54-year-old actor revealed this week that he had been diagnosed with congenital myasthenic syndrome (CMS), a rare genetic neuromuscular disorder that disrupts communication between nerve and muscle cells, leading to progressive muscle weakness. Bailey shared the news in a candid thread on

“Out of professional prudence, out of diagnostic uncertainty and out of concern for confidentiality regarding these kinds of things in general, I have hidden my fight against this illness for more than five years. » Bailey wrote. “It’s time to stop.”

According to the Cleveland ClinicCMS occurs when nerve signals fail to properly activate muscles, meaning physical activity can quickly lead to fatigue and weakness. For Bailey, this reality has become increasingly visible in everyday life.

“My muscles aren’t clearly getting all the commands from my brain to do all the things that muscles are supposed to do,” the “Grey’s Anatomy” actor explained, adding that his arms, hands and legs were tiring much faster than expected. Sustained or repetitive movements, he noted, can even cause one’s muscles to “tighten and temporarily shut down.”

Although Bailey can still walk short distances, such as taking his dog around the block or running quick errands, he now frequently relies on a power wheelchair to get around. The “Grey’s Anatomy” star describes himself as an ambulatory wheelchair user, moving between walking and wheeling as his body allows.

“I move around a little, then I sit, I move in a wheelchair, I move, I sit and then, you know, I move,” he wrote, sharing that the back and forth led to unexpected and sometimes humorous moments, like getting up in a department store to help a stranger reach an item on a high shelf, despite using a wheelchair just minutes earlier.

Bailey acknowledged that the progression of his condition means his life and work will be different in the future. “Practically, going forward, it’s time for my work, as in my life, to start skewing more wheelchair-biased,” he shared. “It really was a bygone era.”

Yet the “Grey’s Anatomy” actor makes it clear that his abilities and passion remain intact. He emphasized that he could still perform, including handling “walks and talks”, standing up when necessary and fully embodying the characters on screen. “I’m the same guy. Same actor. Same artist,” Bailey wrote. “Now with wheels.”

Rather than retiring, Bailey says he is ready to embrace what comes next, both personally and professionally. By publicly sharing his diagnosis, he hopes to open doors not only for himself, but also for greater representation of disability in film and television. “I hope there is still room for me in this industry that I love,” he wrote. “I look forward to playing characters who live their lives with a chair, creating a more representative world in film and television.”

After years of quietly managing his condition behind the scenes, Bailey says he’s no longer hiding. Instead, he moves forward, literally and figuratively, into a new chapter defined not by limitation, but by honesty, visibility, and resilience.